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Showing posts with label Parents of Galactosemic Children. Show all posts
Showing posts with label Parents of Galactosemic Children. Show all posts

Wednesday, October 5, 2011

So Much Change, So Little Time

Hannah Claire 4 months



Last month we moved across the country: 2,000 miles, 4 days, 1 Uhaul truck, 3 little ones, 1 wild ride.   Settling in and Hannah just had her first appointment with her new medical team: a genetic specialist, a genetic counselor, a nutritionist, and RN.  Needless to say, they are now official members of the Hannah Claire Fan Club. ("I'm not only a member; I'm also the president").

So happy to report at 4.5 months she is right on track developmentally. She's rolling over, almost sitting up, trying to crawl with all of her might, laughing up a storm, and ready to begin eating!

After the initial anxiety attack, I'm beginning to look forward to this new chapter in our lives. Leaving the safety of a bottle full of warm soy formula and venturing into baby food jars with varying galactose levels is terrifying. I'll report back once the jars are opened and she has her first bite...yikes.

Sunday, July 10, 2011

New Friends!

Gregory 3 1/2 & Hannah Claire 2 months
Just had the opportunity to meet some new friends! So thankful for Melissa and her little guy Gregory coming over to play! Gregory is 3 1/2 and has Galactosemia too. Melissa contacted me through the Parents of Galactosemic Children group (PGC) and lives only 20 miles away. It was so nice to have someone who knows firsthand what we've experienced, can answer questions we have, and can sympathize with our concerns. I know she will be both a great resource and friend.